Resources
- Data Access Resources
- Using health and care data in data-driven technologies
- Confidentiality: good practice in handling patient information - ethical guidance - GMC (gmc-uk.org)
- The Caldicott Principles - UKCGC
- Protecting patient data - NHS Digital
- Health Research Authority (hra.nhs.uk)
- Research planning - HRA
- Identifying your participants in research - HRA
- Student research toolkit - HRA
- Research Ethics Committee (REC) review - HRA
- Confidentiality Advisory Group (CAG) - HRA
- CAG pre-application checklist - HRA (PDF)
- Data protection: The Data Protection Act - GOV.UK
- Information Commissioner’s Office (ICO) website
- Guide to the UK General Data Protection Regulation (UK GDPR) - ICO
- Data protection self assessment - ICO
- ICO call for views: Anonymisation, pseudonymisation and privacy enhancing technologies guidance
- Introduction to anonymisation - ICO (PDF)
- Anonymisation: managing data risk code of practice - ICO (PDF)
- 10 Misunderstandings Related to Anonymisation - EDPS (PDF)
- The Role of Anonymisation and Pseudonymisation Under the EU Data Privacy Rules: Beyond the ‘All or Nothing’ Approach - SSRN (PDF)
- Health Data Linkage for UK Public Interest Research: Key Obstacles and Solutions - NCBI (PDF)
- Data anonymisation: legal, ethical, and strategic considerations - FORS (PDF)
- Data Anonymisation & Risk Assessment - Process Map and Automation Efforts (lexjansen.com) (PDF)
- A Systematic Review of Re-Identification Attacks on Health Data - PLOS ONE
- NHS data sets
- NHS England Transformation Directorate
- Synthetic data in machine learning for medicine and healthcare (nature.com)
- Synthesizing single-case studies: A Monte Carlo examination of a three-level meta-analytic model - SpringerLink
- A guide to synthesising case studies (whatworkswellbeing.org) (PDF)
- Synthetic datasets listed by the Health Data Research Innovation Gateway
- Synthetic data from the Clinical Practice Research Datalink (CPRD)